About Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy (PPMD) is a national nonprofit organization founded in 1994 by parents of children with Duchenne muscular dystrophy.  Duchenne muscular dystrophy is the most common lethal genetic disorder diagnosed during early childhood, affecting approximately 1 out of every 3,500 boys and 20,000 babies born each year.  The organization’s mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education and compassion.  PPMD is the largest grassroots organization in the U.S. entirely focused on Duchenne muscular dystrophy.  It is headquartered in Midddletown, Ohio with offices in Fort Lee, New Jersey.

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