About Duchenne Muscular Dystrophy: Facts & Statistics

Duchenne Muscular Dystrophy (DMD) is the most common lethal genetic disorder diagnosed during childhood.  It is a progressive muscle disorder that causes loss of muscle function and independence.  TO THIS DAY…there is NO CURE.

Because the Duchenne Muscular Dystrophy gene is found on the “X” chromosome, the disorder manifests primarily in boys.  It knows no boundaries.  It affects all races and all cultures.

DMD affects approximately 1 in 3,500 boys and each year, around 20,000 children worldwide are born with DMD.

Although many cases are genetically inherited, approximately 35% of all DMD cases are the result of a new random spontaneous genetic mutation that can occur during any pregnancy regardless of family history.

In 1986, the gene that causes Duchenne Muscular Dystrophy was successfully identified and isolated by medical researchers.

For more information, check out PPMD’s pages about Duchenne including:


  1. Cheryl Sumerix says:

    I have a boy who is 21 years of age who has Duchenne Muscular Dystrophy. I am writing a book about him and how his life has gone over the past 21 years. He has cardiomyopathy and stomach problems. We have almost lost him twice, once in 2007 and another time here in 2012. There are times when I wonder how long it will last and worry so much about when he will pass. I try so hard to care for him but it is really hard not knowing when his life will end. I just pray that he will live to be 100 although I know he wont. He has an ejection fraction of 21% and his doc says its good but still makes me worry because he is weak and fragile. I would like more info about DMD could I get it from you??

  2. Shannon Oakley says:

    Hi Cheryl,

    I’m doing a college research paper on Duchenne Muscular Dystrophy, and it’s been emotional for me just to read abouy the facts. I have so much information I could give you! I have learned so much about this disease. Please feel free to email me! ShannonAoakley21@gmail.com

  3. I had a brother with DMD; we all loved him and cared for him a lot. He did not have many complications, he was pretty healthy but he suffered from constipation because of his sedentary life (in a wheelchair from the age of 10-11; the month before he died he could not even sit in his wheelchair anymore; his death was caused by a stomach problem (my Mom used to give him stool softeners every week; I believe that was not good and, maybe, he would have lived longer without that) and he passed in front of me at the age of 25 and 4 months. I miss him even today and I am over 60 now. He was the most intelligent, educated, well read, talented person I’ve ever met in my life. He constantly studied, he learned foreign languages, he liked to draw, he liked sports, music, movies, books… you name it. He was also very protective of me, his baby sister. He was just 2 years older then me. He was my best friend ever and I love him and miss him.

  4. Ra'chel McCoy says:

    Hello ,I have a son named Timothy.He will be 21 on Dec 31st , He has DMD. MY FATHER ALSO had it, and my uncle, and 8 other cousins.
    We lost all of them My Timmy is the 11th one on our family to have DMD.
    I COULD NEVER BE ANY PROUDER THAN or any luckier to have him in My life. I love him .His sister loves and cares for him everyday. They are Best friends, Confidants,. I just worrie about how his passing will affect Chyenne and myself.. Sincerely Ra’chel

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